Last year a few parents of children with undiagnosed genetic conditions decided to declare 13th April ‘Undiagnosed Children’s Day’.
The idea was to help raise awareness by talking, tweeting, blogging and texting about undiagnosed children and wearing blue (and sharing pictures of yourself wearing blue.) You can read the original post here.
Here at SWAN UK we have decided to join in this year and take things a little bit further.
As well as making as much noise as possible online (read about the SWAN UK Single Post Blog Awards here), we would also like you to get out and about in your local area raising awareness and generally demanding as much attention as you can to help get children with undiagnosed genetic conditions noticed!
To tie in with the SWAN UK colour schemes we are asking you to wear pink and/or blue on the day and make sure you share your photos with us either via Facebook or Twitter (be sure to use #undiagnosed) and we will load them up onto our blog throughout the day so you can see what is happening in other areas.
How can I celebrate ‘Undiagnosed Children’s Day’?
Take part online
Change your Facebook or Twitter profile to a picture of you in blue/and or pink (or your SWAN UK t-shirt or hoodie), write a blog post, tweet us pictures of you wearing blue or pink, post your pictures on our Facebook wall, share your story on the SWAN UK blog, use your status updates to ask all your friends to join in the celebrations. You can get badges, banners and pictures here.
Take part in a challenge event
Get your friends, family, colleagues and neighbours to sponsor you in a run, swim, bike ride, bungee jump, sky dive or other challenge event. For more ideas or to find an event near you, check out charity events websites like Do it For Charity or specialist event firms like UK Skydiving Adventures.
Be a local media star!
Appearing on local radio or in your local paper is a fantastic way to reach out to other parents in your area who might benefit from support from SWAN UK – get in touch with their news desk (you should be able to get their contact details by looking at their web page) and see if they are interested in your story.
Meet up with other SWAN UK families
Why not use the day as an excuse to catch up with other SWAN UK families near you by arranging a party? Make sure you share your photos with us!
Organise an event or activity
Involve your friends, family, work colleagues, neighbours, school, place of worship or club in an event to raise awareness / funds. You can do just about anything:
- Coffee mornings, lunches, parties.
- Concerts, pub quizzes, golf days, sponsored walks.
- Non-uniform and dress-down days at school or work.
- Sponsored diets, head shaves, beard growing.
- Babysitting, lawn-mowing, car cleaning.
- Unwanted gift/clothes sales, cake sales, car boot sales, auctions.
- Organise volunteers to do a supermarket bag pack.
Make a Collection
Make a collection as part of an event or at work, school, your place of worship or club. Remember, if you are making a collection outside your own home, you should always ask permission and may need a license – check with us if you are not sure. We can provide collection boxes if you need them.
Encourage your Company to Support SWAN UK
If you work for a company that makes donations to charities, ask if they will make one to Genetic Alliance UK to support SWAN UK Awareness Day. Many companies prefer to support charities that have a personal connection with a member of their staff, and some may also consider match funding money raised by staff – so if you and your colleagues do something to raise money, the company might match £1 for every £1 staff raise.
If you would like to discuss your ideas for undiagnosed children’s day, or have any questions, don’t hesitate to get in touch.
Where are events happening for ‘Undiagnosed Children’s Awareness Day’?
View Undiagnosed Children’s Awareness Day 2013 in a larger map